Policy and Practice Reviews

Published on 24 Mar 2022

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

in ELSI in Science and Genetics

Lingqiao Song
Hanshi Liu
Fiona S. L Brinkman
Erin Gill
Emma J. Griffiths
William W. L Hsiao
Sarah Savić-Kallesøe
Sandrine Moreira
Gary Van Domselaar
Ma’n H. Zawati

Frontiers in Genetics

doi 10.3389/fgene.2021.716541

4,030 views
10 citations

Perspective

Published on 21 Mar 2022

Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes

in ELSI in Science and Genetics

Stephanie Russo Carroll
Ibrahim Garba
Rebecca Plevel
Desi Small-Rodriguez
Vanessa Y. Hiratsuka
Maui Hudson
Nanibaa’ A. Garrison

Frontiers in Genetics

doi 10.3389/fgene.2022.823309

8,294 views
33 citations

Opinion

Published on 03 Mar 2022

The Articulation of Genomics, Mestizaje, and Indigenous Identities in Chile: A Case Study of the Social Implications of Genomic Research in Light of Current Research Practices

in ELSI in Science and Genetics

Constanza P. Silva
Constanza de la Fuente Castro
Tomás González Zarzar
Maanasa Raghavan
Ayelén Tonko-Huenucoy
Felipe I. Martínez
Nicolás Montalva

Frontiers in Genetics

doi 10.3389/fgene.2022.817318

5,925 views
11 citations

Opinion

Published on 25 Feb 2022

Underrepresented Populations at the Archaic Introgression Frontier

in ELSI in Science and Genetics

Fernando A Villanea
Kelsey E. Witt

Frontiers in Genetics

doi 10.3389/fgene.2022.821170

3,296 views
4 citations

Policy and Practice Reviews

Published on 18 Feb 2022

Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

in ELSI in Science and Genetics

Ciara Staunton
Santa Slokenberga
Andrea Parziale
Deborah Mascalzoni

Frontiers in Genetics

doi 10.3389/fgene.2022.719317

5,876 views
12 citations

Original Research

Published on 03 Feb 2022

Evaluation of a Genetics Education Program for Health Interpreters: A Pilot Study

in ELSI in Science and Genetics

Miranda E. Vidgen
Lindsay F. Fowles
Satrio Nindyo Istiko
Erin Evans
Katrina Cutler
Kate Sullivan
Jessica Bean
Louise Healy
Gary Hondow
Aideen M. McInerney-Leo

Frontiers in Genetics

doi 10.3389/fgene.2021.771892

3,514 views
7 citations

Original Research

Published on 10 Jan 2022

Current State of Compulsory Basic and Clinical Courses in Genetics for Medical Students at Medical Faculties in Balkan Countries With Slavic Languages

in ELSI in Science and Genetics

Nina Pereza
Rifet Terzić
Dijana Plaseska-Karanfilska
Olivera Miljanović
Ivana Novaković
Željka Poslon
Saša Ostojić
Borut Peterlin

Frontiers in Genetics

doi 10.3389/fgene.2021.793834

2,242 views
2 citations

Original Research

Published on 20 Dec 2021

Resprouters Versus Reseeders: Are Wild Rooibos Ecotypes Genetically Distinct?

in ELSI in Science and Genetics

J. Brooks
N. P. Makunga
K. L. Hull
M. Brink-Hull
R. Malgas
R. Roodt-Wilding

Frontiers in Genetics

doi 10.3389/fgene.2021.761988

2,273 views
1 citation

Brief Research Report

Published on 14 Dec 2021

The Importance of Genomic Literacy and Education in Nursing

in ELSI in Science and Genetics

Dijana Majstorović
Anita Barišić
Mauro Štifanić
Igor Dobrača
Jadranka Vraneković

Frontiers in Genetics

doi 10.3389/fgene.2021.759950

6,788 views
9 citations

Review

Published on 07 Dec 2021

Lessons Learned From Translational Research in Neuromuscular Diseases: Impact on Study Design, Outcome Measures and Managing Expectation

in ELSI in Science and Genetics

Georgia Stimpson
Mary Chesshyre
Giovanni Baranello
Francesco Muntoni

Frontiers in Genetics

doi 10.3389/fgene.2021.759994

2,467 views
3 citations

Policy and Practice Reviews

Published on 12 Nov 2021

Recommendations for Creating Codes of Conduct for Processing Personal Data in Biobanking Based on the GDPR art.40

in ELSI in Science and Genetics

Dorota Krekora-Zając
Błażej Marciniak
Jakub Pawlikowski

Frontiers in Genetics

doi 10.3389/fgene.2021.711614

3,207 views
4 citations

Policy and Practice Reviews

Published on 10 Nov 2021

Consensus Guidelines for Improving Quality of Assessment and Training for Neuromuscular Diseases

in ELSI in Science and Genetics

Tina Duong
Kristin J. Krosschell
Meredith K. James
Leslie Nelson
Lindsay N. Alfano
Katy Eichinger
Elena Mazzone
Kristy Rose
Linda P. Lowes
Anna Mayhew

Frontiers in Genetics

doi 10.3389/fgene.2021.735936

4,996 views
5 citations

Policy and Practice Reviews

Published on 29 Oct 2021

Remote Delivery of Motor Function Assessment and Training for Clinical Trials in Neuromuscular Disease: A Response to the COVID-19 Global Pandemic

in ELSI in Science and Genetics

Meredith K. James
Kristy Rose
Lindsay N. Alfano
Natalie F. Reash
Michelle Eagle
Linda P. Lowes

Frontiers in Genetics

doi 10.3389/fgene.2021.735538

2,804 views
11 citations

Review

Published on 04 Oct 2021

Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench

in ELSI in Science and Genetics

Leslie Nelson
Susan T. Iannaccone

Frontiers in Genetics

doi 10.3389/fgene.2021.734691

1,366 views
2 citations

Perspective

Published on 03 Sep 2021

The Role of the European Society of Human Genetics in Delivering Genomic Education

in ELSI in Science and Genetics

Edward S. Tobias
Elena Avram
Patricia Calapod
Christophe Cordier
Johan T. den Dunnen
Can Ding
Vita Dolzan
Sofia Douzgou Houge
Sally Ann Lynch
James O’Byrne

Frontiers in Genetics

doi 10.3389/fgene.2021.693952

3,798 views
7 citations

Opinion

Published on 31 Aug 2021

HIV/AIDS Epidemic and COVID-19 Pandemic in Africa

in ELSI in Science and Genetics

Abdullahi Tunde Aborode
Athanasios Alexiou
Shoaib Ahmad
Mohammad Yasir Essar
Osuji Samuel Chibueze
Yahea Al-Zahrani
Oni-Ebenezer Ayomide
Gaber El-Saber Batiha

Frontiers in Genetics

doi 10.3389/fgene.2021.670511

6,854 views
5 citations

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Articles

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes

The Articulation of Genomics, Mestizaje, and Indigenous Identities in Chile: A Case Study of the Social Implications of Genomic Research in Light of Current Research Practices

Underrepresented Populations at the Archaic Introgression Frontier

Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

Evaluation of a Genetics Education Program for Health Interpreters: A Pilot Study

Current State of Compulsory Basic and Clinical Courses in Genetics for Medical Students at Medical Faculties in Balkan Countries With Slavic Languages

Resprouters Versus Reseeders: Are Wild Rooibos Ecotypes Genetically Distinct?

The Importance of Genomic Literacy and Education in Nursing

Lessons Learned From Translational Research in Neuromuscular Diseases: Impact on Study Design, Outcome Measures and Managing Expectation

Recommendations for Creating Codes of Conduct for Processing Personal Data in Biobanking Based on the GDPR art.40

Consensus Guidelines for Improving Quality of Assessment and Training for Neuromuscular Diseases

Remote Delivery of Motor Function Assessment and Training for Clinical Trials in Neuromuscular Disease: A Response to the COVID-19 Global Pandemic

Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench

The Role of the European Society of Human Genetics in Delivering Genomic Education

HIV/AIDS Epidemic and COVID-19 Pandemic in Africa