Frontiers in Genetics | ELSI in Science and Genetics

Perspective

Published on 22 Jul 2022

Community input in a genomic health implementation program: Perspectives of a community advisory group

in ELSI in Science and Genetics

Miranda E. Vidgen
Katrina Cutler
Jessica Bean
David Bunker
Lindsay F. Fowles
Louise Healy
Gary Hondow
Satrio Nindyo Istiko
Aideen M. McInerney-Leo
Gregory Pratt

Frontiers in Genetics

doi 10.3389/fgene.2022.892475

2,480 views

Original Research

Published on 08 Jul 2022

Ethical Implications of e-Health Applications in Early Preventive Healthcare

in ELSI in Science and Genetics

Mandy Stake
Bert Heinrichs

Frontiers in Genetics

doi 10.3389/fgene.2022.902631

4,749 views
2 citations

Editorial

Published on 04 Jul 2022

Editorial: Lessons Learned from Translational Research in Neuromuscular Diseases: Impact on Study Design, Outcome Measures and Managing Expectation

in ELSI in Science and Genetics

Anna G. Mayhew
Leslie Nelson
Michela Guglieri
Tracey Willis

Frontiers in Genetics

doi 10.3389/fgene.2022.840074

1,993 views
1 citation

Perspective

Published on 20 Jun 2022

Sharing and Safeguarding Pediatric Data

in ELSI in Science and Genetics

Dimitri Patrinos
Bartha Maria Knoppers
David P. Laplante
Noriyeh Rahbari
Ashley Wazana

Frontiers in Genetics

doi 10.3389/fgene.2022.872586

3,194 views
4 citations

Perspective

Published on 13 Jun 2022

You Can’t Have AI Both Ways: Balancing Health Data Privacy and Access Fairly

in ELSI in Science and Genetics

Marieke Bak
Vince Istvan Madai
Marie-Christine Fritzsche
Michaela Th. Mayrhofer
Stuart McLennan

Frontiers in Genetics

doi 10.3389/fgene.2022.929453

20,753 views
45 citations

Original Research

Published on 13 Jun 2022

Biomolecular Prospecting, Informative Gaps, and the Cancer Clinic: A Qualitative Fieldwork and an Epistemological, Historical and Ethical Analysis of Informed Consent for Clinical Trials for Monoclonal Antibodies and Biobank Research

in ELSI in Science and Genetics

Flavio D’Abramo
Annemieke Bont
Lisa Nüßlein

Frontiers in Genetics

doi 10.3389/fgene.2022.872211

2,259 views

Editorial

Published on 28 Apr 2022

Editorial: The Importance of Genetic Literacy and Education in Medicine

in ELSI in Science and Genetics

Nina Pereza
Borut Peterlin
Saša Ostojić
Željka Poslon

Frontiers in Genetics

doi 10.3389/fgene.2022.910530

2,465 views
1 citation

Perspective

Published on 26 Apr 2022

Precision Medicine Needs to Think Outside the Box

in ELSI in Science and Genetics

Daphne O. Martschenko
Jennifer L. Young

Frontiers in Genetics

doi 10.3389/fgene.2022.795992

2,544 views
9 citations

Perspective

Published on 26 Apr 2022

Recommendations for Sustainable Ancient DNA Research in the Global South: Voices From a New Generation of Paleogenomicists

in ELSI in Science and Genetics

Maria C. Ávila-Arcos
Constanza de la Fuente Castro
Maria A. Nieves-Colón
Maanasa Raghavan

Frontiers in Genetics

doi 10.3389/fgene.2022.880170

10,780 views
32 citations

Policy and Practice Reviews

Published on 24 Mar 2022

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

in ELSI in Science and Genetics

Lingqiao Song
Hanshi Liu
Fiona S. L Brinkman
Erin Gill
Emma J. Griffiths
William W. L Hsiao
Sarah Savić-Kallesøe
Sandrine Moreira
Gary Van Domselaar
Ma’n H. Zawati

Frontiers in Genetics

doi 10.3389/fgene.2021.716541

4,431 views
10 citations

Perspective

Published on 21 Mar 2022

Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes

in ELSI in Science and Genetics

Stephanie Russo Carroll
Ibrahim Garba
Rebecca Plevel
Desi Small-Rodriguez
Vanessa Y. Hiratsuka
Maui Hudson
Nanibaa’ A. Garrison

Frontiers in Genetics

doi 10.3389/fgene.2022.823309

9,481 views
50 citations

Opinion

Published on 03 Mar 2022

The Articulation of Genomics, Mestizaje, and Indigenous Identities in Chile: A Case Study of the Social Implications of Genomic Research in Light of Current Research Practices

in ELSI in Science and Genetics

Constanza P. Silva
Constanza de la Fuente Castro
Tomás González Zarzar
Maanasa Raghavan
Ayelén Tonko-Huenucoy
Felipe I. Martínez
Nicolás Montalva

Frontiers in Genetics

doi 10.3389/fgene.2022.817318

6,407 views
12 citations

Opinion

Published on 25 Feb 2022

Underrepresented Populations at the Archaic Introgression Frontier

in ELSI in Science and Genetics

Fernando A Villanea
Kelsey E. Witt

Frontiers in Genetics

doi 10.3389/fgene.2022.821170

3,805 views
5 citations

Policy and Practice Reviews

Published on 18 Feb 2022

Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

in ELSI in Science and Genetics

Ciara Staunton
Santa Slokenberga
Andrea Parziale
Deborah Mascalzoni

Frontiers in Genetics

doi 10.3389/fgene.2022.719317

6,453 views
16 citations

Original Research

Published on 03 Feb 2022

Evaluation of a Genetics Education Program for Health Interpreters: A Pilot Study

in ELSI in Science and Genetics

Miranda E. Vidgen
Lindsay F. Fowles
Satrio Nindyo Istiko
Erin Evans
Katrina Cutler
Kate Sullivan
Jessica Bean
Louise Healy
Gary Hondow
Aideen M. McInerney-Leo

Frontiers in Genetics

doi 10.3389/fgene.2021.771892

3,809 views
8 citations

Original Research

Published on 10 Jan 2022

Current State of Compulsory Basic and Clinical Courses in Genetics for Medical Students at Medical Faculties in Balkan Countries With Slavic Languages

in ELSI in Science and Genetics

Nina Pereza
Rifet Terzić
Dijana Plaseska-Karanfilska
Olivera Miljanović
Ivana Novaković
Željka Poslon
Saša Ostojić
Borut Peterlin

Frontiers in Genetics

doi 10.3389/fgene.2021.793834

2,450 views
2 citations