Systematic Review

Published on 10 Oct 2019

Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review

in ELSI in Science and Genetics

R. Brian Woodbury
Julie A. Beans
Vanessa Y. Hiratsuka
Wylie Burke

Frontiers in Genetics

doi 10.3389/fgene.2019.00942

6,259 views
11 citations

Opinion

Published on 08 Oct 2019

Strategies for Genomic Medicine Education in Low- and Middle-Income Countries

in ELSI in Science and Genetics

Nirmala D. Sirisena
Vajira H. W. Dissanayake

Frontiers in Genetics

doi 10.3389/fgene.2019.00944

3,115 views
8 citations

Mini Review

Published on 11 Sep 2019

Preparing Medical Specialists to Practice Genomic Medicine: Education an Essential Part of a Broader Strategy

in ELSI in Science and Genetics

Erin Crellin
Belinda McClaren
Amy Nisselle
Stephanie Best
Clara Gaff
Sylvia Metcalfe

Frontiers in Genetics

doi 10.3389/fgene.2019.00789

10,398 views
53 citations

Review

Published on 03 Sep 2019

Ethical Challenges of Germline Genetic Enhancement

in ELSI in Science and Genetics

Ignacio Macpherson
María Victoria Roqué
Ignacio Segarra

Frontiers in Genetics

doi 10.3389/fgene.2019.00767

47,569 views
10 citations

Mini Review

Published on 02 Aug 2019

Evidence-Based Genetic Education of Non-Genetic-Expert Physicians: Experiences Over Three Decades in Amsterdam

in ELSI in Science and Genetics

Martina C. Cornel

Frontiers in Genetics

doi 10.3389/fgene.2019.00712

3,305 views
11 citations

Policy and Practice Reviews

Published on 29 Jul 2019

Enabling Global Clinical Collaborations on Identifiable Patient Data: The Minerva Initiative

in ELSI in Science and Genetics

Christoffer Nellåker
Fowzan S. Alkuraya
Gareth Baynam
Raphael A. Bernier
Francois P.J. Bernier
Vanessa Boulanger
Michael Brudno
Han G. Brunner
Jill Clayton-Smith
Benjamin Cogné

Frontiers in Genetics

doi 10.3389/fgene.2019.00611

7,628 views
15 citations

Opinion

Published on 07 Jun 2019

Parental Selective Reproduction: Genome-Editing and Maternal Behavior as a Potential Concern

in ELSI in Science and Genetics

Andrea Lavazza

Frontiers in Genetics

doi 10.3389/fgene.2019.00532

56,058 views
5 citations

Original Research

Published on 26 Apr 2019

How Uncertainty Influences Lay People’s Attitudes and Risk Perceptions Concerning Predictive Genetic Testing and Risk Communication

in ELSI in Science and Genetics

Sabine Wöhlke
Manuel Schaper
Silke Schicktanz

Frontiers in Genetics

doi 10.3389/fgene.2019.00380

7,416 views
21 citations

Policy and Practice Reviews

Published on 05 Apr 2019

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

in ELSI in Science and Genetics

Gratien Dalpé
Adrian Thorogood
Bartha Maria Knoppers

Frontiers in Genetics

doi 10.3389/fgene.2019.00289

5,960 views
22 citations

Policy and Practice Reviews

Published on 29 Mar 2019

Big Data Needs Big Governance: Best Practices From Brain-CODE, the Ontario-Brain Institute’s Neuroinformatics Platform

in ELSI in Science and Genetics

Shannon Lefaivre
Brendan Behan
Anthony Vaccarino
Kenneth Evans
Moyez Dharsee
Tom Gee
Costa Dafnas
Tom Mikkelsen
Elizabeth Theriault

Frontiers in Genetics

doi 10.3389/fgene.2019.00191

5,961 views
16 citations

Perspective

Published on 15 Feb 2019

Genomics for All: International Open Science Genomics Projects and Capacity Building in the Developing World

in ELSI in Science and Genetics

Martin Hetu
Konstantia Koutouki
Yann Joly

Frontiers in Genetics

doi 10.3389/fgene.2019.00095

6,499 views
15 citations

Original Research

Published on 09 Jan 2019

Predicting Public Attitudes Toward Gene Editing of Germlines: The Impact of Moral and Hereditary Concern in Human and Animal Applications

in ELSI in Science and Genetics

Christine Critchley
Dianne Nicol
Gordana Bruce
Jarrod Walshe
Tamara Treleaven
Bernard Tuch

Frontiers in Genetics

doi 10.3389/fgene.2018.00704

19,086 views
44 citations

Original Research

Published on 03 Dec 2018

Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics?

in ELSI in Science and Genetics

Li Du
Shmuel I. Becher

Frontiers in Genetics

doi 10.3389/fgene.2018.00550

7,002 views
8 citations

Review

Published on 29 Jun 2018

Fast-Growing Engineered Microbes: New Concerns for Gain-of-Function Research?

in ELSI in Science and Genetics

Lei Pei
Markus Schmidt

Frontiers in Genetics

doi 10.3389/fgene.2018.00207

13,922 views
11 citations

Perspective

Published on 08 Jun 2018

Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination

in ELSI in Science and Genetics

Charles Dupras
Lingqiao Song
Katie M. Saulnier
Yann Joly

Frontiers in Genetics

doi 10.3389/fgene.2018.00202

20,210 views
37 citations

Perspective

Published on 01 Jun 2018

Authentication of Patients and Participants in Health Information Exchange and Consent for Medical Research: A Key Step for Privacy Protection, Respect for Autonomy, and Trustworthiness

in ELSI in Science and Genetics

Atsushi Kogetsu
Soichi Ogishima
Kazuto Kato

Frontiers in Genetics

doi 10.3389/fgene.2018.00167

14,003 views
21 citations

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Articles

Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review

Strategies for Genomic Medicine Education in Low- and Middle-Income Countries

Preparing Medical Specialists to Practice Genomic Medicine: Education an Essential Part of a Broader Strategy

Ethical Challenges of Germline Genetic Enhancement

Evidence-Based Genetic Education of Non-Genetic-Expert Physicians: Experiences Over Three Decades in Amsterdam

Enabling Global Clinical Collaborations on Identifiable Patient Data: The Minerva Initiative

Parental Selective Reproduction: Genome-Editing and Maternal Behavior as a Potential Concern

How Uncertainty Influences Lay People’s Attitudes and Risk Perceptions Concerning Predictive Genetic Testing and Risk Communication

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

Big Data Needs Big Governance: Best Practices From Brain-CODE, the Ontario-Brain Institute’s Neuroinformatics Platform

Genomics for All: International Open Science Genomics Projects and Capacity Building in the Developing World

Predicting Public Attitudes Toward Gene Editing of Germlines: The Impact of Moral and Hereditary Concern in Human and Animal Applications

Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics?

Fast-Growing Engineered Microbes: New Concerns for Gain-of-Function Research?

Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination

Authentication of Patients and Participants in Health Information Exchange and Consent for Medical Research: A Key Step for Privacy Protection, Respect for Autonomy, and Trustworthiness