Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 07 Jan 2025

Mapping the use of cardiovascular genetic services in pediatric clinical care: challenges and opportunities for improvement

in ELSI in Science and Genetics

Kerstin Hundal
Courtney L. Scherr
Hoda Fakhari
Sanjana Ramesh
Lisa Dellefave-Castillo
Deb Duquette
Sara Cherny
Elizabeth M. McNally
Gregory Webster
Laura J. Rasmussen-Torvik

Frontiers in Genetics

doi 10.3389/fgene.2024.1476466

255 views

Original Research

Published on 06 Jan 2025

Insights from social media into public perspectives on investigative genetic genealogy

in ELSI in Science and Genetics

Sara Huston
Diana Madden
Andrea Villanes
Nathan Reed
Whitney Bash Brooks
Christopher Healey
Christi Guerrini

Frontiers in Genetics

doi 10.3389/fgene.2024.1482831

541 views

Review

Accepted on 26 Dec 2024

Genetic Ancestry and the Colonial Legacies of Race in Genomics: A cross-disciplinary dialogue

in ELSI in Science and Genetics

Ernesto Schwartz Marin
Tayyaba Jiwani
Sarah Abel
Yulia Egorova
Amade M'charek
Diogo Meyer
Andres Moreno-Estrada
Katharina Schramm
Peter Wade
Michel Satya Naslavsky

Frontiers in Genetics

doi 10.3389/fgene.2024.1523406

122 views

Brief Research Report

Published on 12 Dec 2024

Behind the scenes with genomics researchers

in ELSI in Science and Genetics

Renata Mont’Alverne Bretz Giovanini
Lori Bradford
Cheryl Buckmaster
Graham Strickert
Jason MacLean
Diane Dupont

Frontiers in Genetics

doi 10.3389/fgene.2024.1467404

316 views

Brief Research Report

Published on 04 Dec 2024

Workplace genetic testing: which employees are likely to participate, what are their concerns with employer sponsorship, and which design features could reduce barriers and increase participation?

in ELSI in Science and Genetics

Forrest Briscoe
James H. Maxwell
Angel Bourgoin

Frontiers in Genetics

doi 10.3389/fgene.2024.1496900

451 views

Original Research

Published on 08 Nov 2024

Awareness, use, motivations and methods of accessing genetic testing in 2022 in the United States

in ELSI in Science and Genetics

Sukh Makhnoon
MinJae Lee
Tanushree Prasad
Alexa Badalamenti
Tami Gurley
Erika A. Waters
Celette Sugg Skinner

Frontiers in Genetics

doi 10.3389/fgene.2024.1462831

763 views

Original Research

Published on 09 Oct 2024

The current status and improvement directions of legal rules regarding Chinese national gene banks for farm animal genetic resources

in ELSI in Science and Genetics

Qi Chen
Chien Te Fan
Hongtao Jiao

Frontiers in Genetics

doi 10.3389/fgene.2024.1413625

831 views

Mini Review

Published on 14 Aug 2024

Applying an ELSI lens to real-world data and novel genomic insights for personalized mental healthcare

in ELSI in Science and Genetics

Rachele M. Hendricks-Sturrup
Sandra E. Yankah
Christine Y. Lu

Frontiers in Genetics

doi 10.3389/fgene.2024.1444084

1,331 views

Brief Research Report

Published on 16 Jul 2024

Assessing genomics confidence and learning needs in Australian nurses and midwives: an educational program evaluation

in ELSI in Science and Genetics

Kim E. Alexander
Melanie Rolfe
Michael T. Gabbett

Frontiers in Genetics

doi 10.3389/fgene.2024.1419302

979 views

Original Research

Published on 10 Jul 2024

Test-takers’ perspectives on consumer genetic testing for hereditary cancer risk

in ELSI in Science and Genetics

Madison K. Kilbride
Lisa Jay Kessler
Brigitte Cronier
Jacqueline J. Park
Cara N. Cacioppo
Jordyn Beem
Angela R. Bradbury

Frontiers in Genetics

doi 10.3389/fgene.2024.1374602

1,214 views

Perspective

Published on 09 Jul 2024

“Identity theft” in BRCA1/2: impact of positive genetic test results and risk-reducing interventions

in ELSI in Science and Genetics

Jonathan M. Adler
Sharlene Hesse-Biber
Memnun Seven
Andrew A. Dwyer

Frontiers in Genetics

doi 10.3389/fgene.2024.1380637

1,117 views

Original Research

Published on 14 Jun 2024

Risk mapping for better governance in biobanking: the case of biobank.cy

in ELSI in Science and Genetics

Kaya Akyüz
Melanie Goisauf
Gillian M. Martin
Michaela Th. Mayrhofer
Stella Antoniou
Georgia Charalambidou
Constantinos Deltas
Apostolos Malatras
Gregory Papagregoriou
Charalambos Stefanou

Frontiers in Genetics

doi 10.3389/fgene.2024.1397156

1,466 views
1 citation

Hypothesis and Theory

Published on 30 May 2024

The open ontology and information society

in ELSI in Science and Genetics

Meshandren Naidoo

Frontiers in Genetics

doi 10.3389/fgene.2024.1290658

1,134 views
2 citations

Original Research

Published on 17 May 2024

Genetic tests as the strongest motivator of cooperation between participants and biobanks–Findings from cross-sectional study

in ELSI in Science and Genetics

Anita Majchrowska
Jakub Pawlikowski
Jarosław Sak
Blanka Świerczyńska
Magdalena Suchodolska

Frontiers in Genetics

doi 10.3389/fgene.2024.1321690

830 views

Perspective

Published on 04 Apr 2024

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

in ELSI in Science and Genetics

Tsung-Ling Lee
Tsutomu Sawai

Frontiers in Genetics

doi 10.3389/fgene.2024.1381172

2,353 views
1 citation

Original Research

Published on 03 Apr 2024

Introducing dynamic consent for improved trust and privacy in research involving human biological material and associated data in South Africa

in ELSI in Science and Genetics

Larisse Prinsen

Frontiers in Genetics

doi 10.3389/fgene.2024.1272924

1,863 views

Navigation group

Articles

Mapping the use of cardiovascular genetic services in pediatric clinical care: challenges and opportunities for improvement

Insights from social media into public perspectives on investigative genetic genealogy

Genetic Ancestry and the Colonial Legacies of Race in Genomics: A cross-disciplinary dialogue

Behind the scenes with genomics researchers

Workplace genetic testing: which employees are likely to participate, what are their concerns with employer sponsorship, and which design features could reduce barriers and increase participation?

Awareness, use, motivations and methods of accessing genetic testing in 2022 in the United States

The current status and improvement directions of legal rules regarding Chinese national gene banks for farm animal genetic resources

Applying an ELSI lens to real-world data and novel genomic insights for personalized mental healthcare

Assessing genomics confidence and learning needs in Australian nurses and midwives: an educational program evaluation

Test-takers’ perspectives on consumer genetic testing for hereditary cancer risk

“Identity theft” in BRCA1/2: impact of positive genetic test results and risk-reducing interventions

Risk mapping for better governance in biobanking: the case of biobank.cy

The open ontology and information society

Genetic tests as the strongest motivator of cooperation between participants and biobanks–Findings from cross-sectional study

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

Introducing dynamic consent for improved trust and privacy in research involving human biological material and associated data in South Africa